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A Comprehensive Needs Assessment Tool for Planning RHD Control Programs in Limited Resource Settings

Authors:

Liesl J. Zühlke ,

Department of Paediatrics, Red Cross War Memorial Children’s Hospital and University of Cape Town, Cape Town; Department of Medicine, Groote Schuur Hospital and University of Cape Town, Cape Town, ZA
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David A. Watkins,

Department of Medicine, Groote Schuur Hospital and University of Cape Town, Cape Town, ZA; Division of General Internal Medicine, Department of Medicine, University of Washington, Seattle, WA, US
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Susan Perkins,

Department of Paediatrics, Red Cross War Memorial Children's Hospital and University of Cape Town, Cape Town, ZA
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Rosemary Wyber,

Telethon Kids Institute, University of Western Australia, Perth, Western Australia, AU
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Jeremiah Mwangi,

World Heart Federation, Geneva, CH
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Joanna Markbreiter,

World Heart Federation, Geneva, CH
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Hlengiwe S. Moloi,

Department of Paediatrics, Red Cross War Memorial Children's Hospital and University of Cape Town, Cape Town, ZA
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Mark E. Engel,

Department of Medicine, Groote Schuur Hospital and University of Cape Town, Cape Town, ZA
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Thembikile Shato,

Department of Paediatrics, Red Cross War Memorial Children’s Hospital and University of Cape Town, Cape Town, ZA
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Tayla Hermanus,

Department of Paediatrics, Red Cross War Memorial Children’s Hospital and University of Cape Town, Cape Town, ZA
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Jantina DeVries,

Department of Paediatrics, Red Cross War Memorial Children’s Hospital and University of Cape Town, Cape Town, ZA
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Clancy Read

Telethon Kids Institute, University of Western Australia, Perth, Western Australia, AU
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Abstract

Rheumatic heart disease (RHD) is an important cause of disability and death in low- and middle-income countries. However, evidence-based interventions have not been implemented systematically in many countries. We present a RHD Needs Assessment Tool (NAT) that can be used at country or regional levels to systematically develop and plan comprehensive RHD control programs and to provide baseline data for program monitoring and evaluation. The RHD NAT follows a mixed-methods approach using quantitative and qualitative data collection instruments. Evidence is mapped to a conceptual model that follows a patient through the natural history of RHD. The NAT has 4 phases: 1) situational assessment; 2) facility-based assessment of epidemiology and health system capacity; 3) patient and provider experience of RHD using ethnographic methods; and 4) intervention planning, including stakeholder mapping and development of a monitoring and evaluation framework. The RHD NAT is designed to paint a comprehensive picture of RHD care in an endemic setting and to identify the major gaps to disseminating and implementing evidence-based interventions.

Highlights

  • Tackling RHD in endemic countries requires local information on the major needs and gaps in care.
  • We developed a NAT, which is used to paint a holistic picture of RHD care.
  • The NAT follows a mixed-methods approach and contains stand-alone modules that occur in 4 phases.
  • Data obtained through the NAT are used in working with local stakeholders to design an RHD program.
How to Cite: Zühlke LJ, Watkins DA, Perkins S, Wyber R, Mwangi J, Markbreiter J, et al.. A Comprehensive Needs Assessment Tool for Planning RHD Control Programs in Limited Resource Settings. Global Heart. 2017;12(1):25–31. DOI: http://doi.org/10.1016/j.gheart.2016.10.028
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Published on 01 Mar 2017.
Peer Reviewed

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